IBD and Crohn’s & Colitis Resources for the United States

IBD in the United States

IBD affects close to 1 in 100 Americans. A CDC-funded study led by the Crohn’s & Colitis Foundation (the INPUT study) found IBD diagnosed in more than 0.7% of the US population (about 721 per 100,000 people), corresponding to an estimated 2.4 million Americans, including over 100,000 children and adolescents.

National Organizations

Crohn's & Colitis Foundation

National organization with local chapters across the US Based in: New York, United States

Organization Type:

Charity Patient Advocacy Health Consumer Organisation

Features:

Support Programs Educational Resources Research Funding

Financial Information:

Over 80 cents of every dollar goes to research, education, and patient support services

Details:

The Crohn’s & Colitis Foundation is a non-profit, founded in 1967, that funds research toward cures for Crohn’s disease and ulcerative colitis and helps children and adults live better with them. It has invested more than $500 million in research, and runs education programs and support services for patients and the professionals who treat them. Learn more about the Foundation

American Gastroenterological Association (AGA)

National professional organization for gastroenterologists Based in: Bethesda, United States

Organization Type:

Health Professional Body Medical Research Organisation

Features:

Clinical Guidelines Patient Resources Research Programs

Details:

The American Gastroenterological Association (AGA) brings together the professionals who research and practice gastroenterology in the US and beyond. Founded in 1897, it now has more than 16,000 members worldwide. Its AGA Institute runs the association’s research, practice, and education programs and publishes the journals Gastroenterology and Clinical Gastroenterology and Hepatology. Learn more about AGA

IBD Support Foundation

National support network for IBD patients Based in: United States

Organization Type:

Charity Patient Advocacy Support Network

Features:

Patient Support Educational Resources Telemedicine

Details:

The IBD Support Foundation is a 501(c)(3) non-profit based in Los Angeles, focused on quality of life for people with inflammatory bowel disease. It offers psychosocial support, education for both patients and providers, and research, and runs programs including a telemedicine center and the Gut Matters podcast. Learn more about IBDSF

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Federal research agency Based in: United States

Organization Type:

Government Body Medical Research Organisation

Features:

Research Funding Educational Resources Clinical Trials

Details:

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the US National Institutes of Health (NIH), conducts and supports research on many of the most common, costly, and chronic conditions, including inflammatory bowel disease. It provides evidence-based health information, funds research, and supports clinical trials related to Crohn’s disease and ulcerative colitis. Learn more about NIDDK’s IBD research

North American Shared Resources

North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN)

Professional organization serving US, Canada, and Mexico Based in: North America

Organization Type:

Health Professional Body Medical Research Organisation

Features:

Clinical Guidelines Educational Resources Research Programs

Details:

NASPGHAN (the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition) works to improve care for infants, children, and adolescents with digestive disorders, including IBD. It develops clinical practice guidelines, supports research, and produces educational resources for the healthcare professionals and families looking after children across North America.

Online Communities

Crohn's & Colitis Foundation: Community & Support

Official patient community and peer support from the US national charity Based in: United States

Organization Type:

Patient Support Group Health Consumer Organisation

Features:

Peer Support Support Group Finder

Details:

The Crohn’s & Colitis Foundation connects patients, families, and caregivers through local and online support groups and its Power of Two program, which pairs people who are newly diagnosed or facing treatment decisions with trained volunteers who live with IBD for one-on-one peer mentoring.

Global Resources

For additional resources available worldwide, please visit our Global Resources page.